Hi, I am 25 living with Cystic Fibrosis. Sharing thoughts, feelings, and positive outlooks for the future!
gymgals!
Monday, August 5, 2013
Clinical Trial invite!
Hello Everyone,
I am starting my blog pertaining to my chronic genetic disease, Cystic Fibrosis.
I am 25 years old, living in New Haven, CT, working for Yale Health System.
On my journey, I hope to inform people of how we live day to day, overcome obstacles, and live life to the fullest.
I have been lucky to not have much hospital visits due to exercise, but I still suffer day to day with my own battles.
Positive UPDATE - I will receive further information on a clinical trial I am participating in September, VERTEX, for Delta508.
VX-809 is a cystic fibrosis transmembrane conductance regulator (CFTR) corrector in development for the treatment of cystic fibrosis. VX-809 is being studied in combination with ivacaftor for people with cystic fibrosis who have the F508del mutation. Vertex has worldwide rights to develop and commercialize VX-809.
(Referance) http://www.vrtx.com/research-development/pipeline ...
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